Presentations in this session:

• Presentation by Annemette Broch, Founder, DATA for GOOD foundation

Data for Care, a project by the Data For Good Platform (DfG), is part of CRANE (an EU PPC-project) and in its implementation phase, where it together with international partners, deliver an ecosystem and a platform where personal data can be shared by citizens and used safely for self empowerment and informed health policy decisions.

• Presentation by Karlien Hollanders, Pharmacist, IT specialist, Patient and Caregiver Expert

What information is generated concerning a patient, where is it stored, how can it be shared among various healthcare providers, and how can I, as a patient, access my own data? Does a system of patient-centric care already exist in Belgium? And what significance does "patient-centric care" hold for an individual patient? This keynote adopts a storytelling approach, offering insights from the perspective of a patient on the quest to unravel these inquiries. Karlien shows how she searches for structure in her daughter's 400 medical documents. She experiments with standards but also with AI to make data interoperable but above all usable.
 

This session is hosted by Pernille Tranberg, Co-Founder, dataethics.eu