Name
Workshop on health data
Date & Time
Friday, September 26, 2025, 9:30 AM - 12:00 PM
Track
Health and wellbeing
Description

Workshop contributions by:

  • Eva Turk, Senior Researcher, CDHSI

From Ashes to Assets
Creating Digital Community Care 2.0 Trust is the core of European health and safety. The need for inclusion in our future health services and digital community is thus fundamental to tackle our current and future challenges in the nexus of democracy, demographics, and digitalisation. This session will offer both insights and create outcomes for actions and strategies to enhance healthcare initiatives, services, and solutions that nurture and strengthen democratic values and address demographic, socioeconomic, ethnic, or gender-based disparities. The session provides a platform to explore how technology can bridge healthcare gaps, navigate the digital landscape, and adapt to shifting needs towards an inclusive, democratic future in Europe. This session contributes to the overarching theme by transitioning the emphasis from problem-oriented to asset-oriented community development through the utilisation of digital transformation. The aim of this session is to explore the paradigm shift from focusing on the deficits and challenges within health promotion and wellbeing in communities to leveraging the strengths and assets inherent within communities to foster health and well-being. By examining the role of digital transformation, we aim to delve into how technology can be a powerful tool in identifying, amplifying, and mobilising these community strengths to address health disparities and foster resilience. For the inclusive, co-creative session, we will use an expanded fishbowl method. Fishbowl discussions are traditionally well placed to create a protected space where everyone—regardless of expertise—can contribute, it is a versatile discussion method fostering inclusivity and dynamic engagement. We intend to expand the method with an outer layer of ideation that allows participants to participate both verbally and creatively in sharing and capturing insights and ideas. Participants will leave with a deeper understanding of how building trust, co-creation and digital transformation can serve as a catalyst for reframing the conversation around community health, empowering individuals and communities to take ownership of their well-being, and fostering sustainable change from within.

  • Elfi Goesaert, R&D researcher & project lead, VITO

There is a strong push towards opening up health data for research and innovation, but let's have a look at how people can contribute themselves. We stand at the crossroads of our clinical data and our own insights and measurements, but are often overlooked. The biggest predictors of chronic disease are lifestyle factors, but these are not systematically captured. In this session, we will dive into people's own role in their health data, and how they can get empowered to engage on their health and wellbeing. We will have a look at how to set up a citizen-centric oriented data sharing platform for health data, and how to collaborate across the whole value chain to make this possible. We will demonstrate how to set up a citizen-centric governance structure and the ethical, legal and societal aspects that help shape it, and how it can technically work as well. In addition, we will show some practical examples of how these ideas get implemented in real-life. Lastly, we’ll have a look at the larger context, and how the European data strategy and legislation supports these concepts, but also what the gaps are that need filling in, and how the governance structure could help towards a more citizen-centric interpretation of the EU data regulations and how to position citizens more firmly in the data spaces ecosystem.
 

Eva Turk Elfi Goesaert
Location Name
Takka
Session Type
Workshop